2.14.2012

:: All You Need is Love...And Sometimes Meds

First and foremost, the most important news of the evening: My darling li'l Jessika got engaged tonight!!!!! And it would be 156% impossible to be any happier for her :) I've watched my precious friend fight CF for going on a decade and she never stops smiling, but that smile has been even brighter in the two years that Leighton has been in her life. It's rare these days to see the unconditional determination and dedication he puts into showing her love and making her happy and it makes me smile to know that she will live the rest of her life adored, safe and well taken care of. New husband...New lungs...New life. It's gonna be a beautiful thing. I love you, kiddo

As for my own Hearts and Hugs Day, it was spent in bed, but I have no complaints. I received a bouquet of gorgeous hot pink roses from my always sweet and thoughtful friend Mike in Florida and an adorable, wide-eyed stuffed puppy wearing a pink boa from my mom that Biscuit keeps sizing up and growling at. Both were complete surprises and put smiles on my face :) Honestly, I've never put a lot of stock into Valentine's Day. No reason really...I've just never been one of those girls that HAS to have plans for fear that I might appear unlovable. True love is all around me every moment of every day, from my cysters to my mama to my friends all over the world who let me know here and there that they're thinking of me. I could not feel more fulfilled or grateful.

My follow-up with the Infectious Disease Specialist was yesterday morning and I was fairly confident that I looked and sounded better than I did a month ago. Apparently not, because instead of leaving with another round of Doxycycline and Voriconazole for my Aspergillus, I left with an order for a PICC line and the excited and thrill-filled expectations {end sarcasm} of my first home IV experience. I know I have zero room to complain...Many of my fellow CFers do home IVs on a regular basis and truthfully, I WOULD rather do them in the comfort of my own home with my pup snuggled up beside me than be immobile in the hospital. What I am NOT looking forward to, however, is that I'll be on a 24-hour continuous infusion for the one-month duration of the treatment. That seems crazy excessive to me, but I ran it by my CF Specialist and he thinks the regimen sounds reasonable. So bright and early tomorrow morning, I go back to the clinic for basic training on how to be both patient AND nurse (Judy! Ruth! Christy! Save me!) and to pick up my first week's worth of medicine. I'm also thinking of starting a video blog with this new experience, so if I do, I'll tag my first installment on the end of this post tomorrow as an edit. Who knows? Could be fun.

Breathe it all in. Love it all out

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Here we go, ladies and gents! Vlog numero uno...Intro to Home IVs. Let me know what you think! :)

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