Bit morbid? Probably. Moving along...
So the last few days until my 29th birthday are rapidly dwindling down. (Crack all the over-the-hill jokes you like, but keep in mind how little they affect us CFers ;) There are only two things that I want for my birthday - One of which has been discussed and will hopefully still be granted at the end of March after my PICC is out and my IVs are over - But the other is more unorthodox. I fully intend to carpe the hell out of my last diems in my twenties, but one day, that may not be possible for me without an organ transplant. The best gift that anyone can give me would be to officially list yourselves on the national organ donation registry. Yes, I'm serious. Currently
more than 110,000 people across the United States are anxiously awaiting
life-saving transplants...One donor can save up to eight lives and one day, one of those lives will be mine. I've been a donor on my driver's license for years, but I just recently registered at DonateLifeTexas.org and in honor of my decision and my birthday, my mama gifted me with the new license plates above that I personalized myself. Love them!!! :) Obviously in my case, my organs will most likely go to CF research instead of transplants, but will still be lifesaving in their own right. Once you've passed, your organs will be of as much use to you as your credit card, so why not make a second lease on this beautiful life possible for someone less fortunate? DonateLife.net. Do it. For me. And then let me know so I can smother you with thank yous :)
I'm also super excited and proud to announce that on 12.12.12, I'll be in sunny Florida standing beside the lovely miss Jessika as one of her bridesmaids! :D I won't lie...Between how happy I am for her, how honored I feel to have been asked and the anticipatory glee of finally getting to vacation to my one beachy dream destination that I've never been to, I got a little teary eyed...Before I started doing my happy dance. As an added bonus, by then she'll be all transplanted up and enjoying a new lease on life that will only be made that much more amazing once she and Leighton are husband and wife. And I get to be a part of all of that? Who says there are no such things as fairy tales?
My weekly follow-up with my Infectious Disease Specialist was Wednesday morning to draw blood, check antibiotic levels, change my PICC dressing and pick up this week's box of IV meds and supplies. I'm slowly becoming accustomed to my new Siamese twin. For the first few days I ran mid-grade fevers which, thankfully, have left and not returned, but have now been replaced with extreme fatigue, a fluctuating appetite, irritability (OK bitchiness...Let's call a spade a spade...), the inability to hear out of my right ear first thing in the morning and most recently, nightmares. Every. Single. Night :-p And the loaded question: "Are you feeling better?" Yes and no. My coughing is more productive when I wake up and after my treatments so my breathing is increasingly becoming easier, but the side effects have me so worn down that it's difficult to notice. Plus I'm going on two months of being out of Pulmozyme, so there's the added effort of getting well without that. But IVs are rough for everyone, so I have zero room to gripe, and I'm committed to doing whatever it takes to get better. It may not always be at the forefront of my mind, but the fact that I can still GET well trumps any complaints that I might have.
"For we walk by faith, not by sight." - 2 Corinthians 5:7. It never ceases to amaze me how certain verses can be as cathartic as hearing the right song lyrics. Thank you, Lord, for continuing to give me strength and patience in more ways than one ♥
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| Happy Birthday to Me! :) |
I'm also super excited and proud to announce that on 12.12.12, I'll be in sunny Florida standing beside the lovely miss Jessika as one of her bridesmaids! :D I won't lie...Between how happy I am for her, how honored I feel to have been asked and the anticipatory glee of finally getting to vacation to my one beachy dream destination that I've never been to, I got a little teary eyed...Before I started doing my happy dance. As an added bonus, by then she'll be all transplanted up and enjoying a new lease on life that will only be made that much more amazing once she and Leighton are husband and wife. And I get to be a part of all of that? Who says there are no such things as fairy tales?
My weekly follow-up with my Infectious Disease Specialist was Wednesday morning to draw blood, check antibiotic levels, change my PICC dressing and pick up this week's box of IV meds and supplies. I'm slowly becoming accustomed to my new Siamese twin. For the first few days I ran mid-grade fevers which, thankfully, have left and not returned, but have now been replaced with extreme fatigue, a fluctuating appetite, irritability (OK bitchiness...Let's call a spade a spade...), the inability to hear out of my right ear first thing in the morning and most recently, nightmares. Every. Single. Night :-p And the loaded question: "Are you feeling better?" Yes and no. My coughing is more productive when I wake up and after my treatments so my breathing is increasingly becoming easier, but the side effects have me so worn down that it's difficult to notice. Plus I'm going on two months of being out of Pulmozyme, so there's the added effort of getting well without that. But IVs are rough for everyone, so I have zero room to gripe, and I'm committed to doing whatever it takes to get better. It may not always be at the forefront of my mind, but the fact that I can still GET well trumps any complaints that I might have.
"For we walk by faith, not by sight." - 2 Corinthians 5:7. It never ceases to amaze me how certain verses can be as cathartic as hearing the right song lyrics. Thank you, Lord, for continuing to give me strength and patience in more ways than one ♥
happy birthday Farrel!
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